6/21, Bell, AMPS 333 +4.5 218 +7 203 PMPS 163, Bell's 1-year FD anniversary | Feline Diabetes Management Board

6/21, Bell, AMPS 333 +4.5 218 +7 203 PMPS 163, Bell's 1-year FD anniversary

Seth&Bell

Seth&Bell

Active member
Yesterday

Wild that we've been at this for a year. Somedays it feels like it has just been weeks, others it feels like we've been doing this for centuries...

I just want to sincerely thank this community for alllllll the help they have given Bell and me. I would call out individuals but I know I'd miss people. Thank you for the experienced folks who have guided me through this process and have literally saved Bell's life. Thank you for the community members here for the loads of emotional support and the lending of pants. This may sound corny, but with all the toxicity that now pervades almost any online place, this community is such a breath of fresh air. I am so grateful to have found this place, without it Bell would not have made it. Or even if she did, I would have lost my mind long ago.

Please let me know if there are any changes I need to make now that it has been a year. I'm already on the more aggressive form of TR (she needs 3 under 50s on different days or 1 under 40 for a reduction). I would also appreciate an honest assessment of her chances of remission. I can do what I'm doing for another year or two, but the long term sustainability of being this aggressive, especially with her IAA and high dose, is probably not a pace I can sustain super long-term. I know her chances are lower for remission, but I've also heard stories here of remission well after a year. Am I right to assume that the IAA actually gives some more hope in that regard? Since she has gone through periods where the insulin wasn't even able to do its job? Any thoughts here would be welcome, no need to sugar (ha) coat it. I'm guessing ECID is the best response to this question :p

Thank you all, sincerely!

Back to your regularly scheduled programming: Bell is on a see-saw, kinda how I expected. Still hitting greens but the dose doesn't seem to quite have the juice to make those greens sticky. Love the quick bounce breaks, even tho she's into the pinks!
 
Happy Anniversary!

When a kitty reaches the one year mark and if you're following TR, the dose reduction point drops from below 50 to below 40. However, it doesn't look to me like you've been taking reductions when Bell has dropped below 50. There are a couple of different options for getting a dose reduction especially in light of the IAA. If you're using a different method, can you include a note in your signature? Otherwise, anyone looking at Bell's spreadsheet is going to be asking the same question I am (and it gets old).
 
Hi Sienne, thank you! As I mentioned above, I’ve already switched to taking reductions when Bell either hits below 40 or if she reads below 50 on 3 different days. She was having trouble holding reductions, so Wendy suggested this as an option.

Would “TR (modified)” be sufficient for my sig or should I detail the modifications?

Edit: I ended up detailing the modifications. Let me know if that makes my sig annoyingly long
 
You don't need to add it to the sig, but a week below 100 also earns a reduction. We can always hope.
Seth&Bell said:
I would also appreciate an honest assessment of her chances of remission. I can do what I'm doing for another year or two, but the long term sustainability of being this aggressive, especially with her IAA and high dose, is probably not a pace I can sustain super long-term. I know her chances are lower for remission, but I've also heard stories here of remission well after a year. Am I right to assume that the IAA actually gives some more hope in that regard?
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You are right on ECID, It's really hard to guess what an individual cat will do. We don't see a lot of IAA only cats, so have even less data to make educated guesses. The antibodies are supposed be self limiting, around a year, but there is a lot of variability. I've seen IAA cats be long timers, but on much smaller doses. I've also seen a couple go into remission. The question is what shape her pancreas is, and she's not talking. If Bell were to go onto smaller doses, one would hope for more flat green/low blues, hence more predictable and more sustainable for you.

Happy Annifursary to you and Bell. You've been an amazing caregiver for your sweet little girl.
 
lol, a week under 100 would be the dream!

Wendy, thank you so so much for all your help with Bell over this past year. I don’t know how to properly express my gratitude, but it really means a lot to me.

I do think this modified TR protocol is a better method for Bell. Even when she zoomed down the dosage in Feb/March, it didn’t seem really sustainable. The <40 alone for reduction would make me nervous since she’s never hit that, but the multi-day <50 requirement seems like a better approach (with the <40 as a backstop) so that the bounce breaking cycles don’t force a reduction that won’t hold.
 
I know it sounds weird to say Happy Anniversary for this but for the lack of better word I'll say it. It's nice to have you and Bell on here and getting to know you both has been fun and I'm glad this community helped you get through this first year. Hopefully it gets easier as time goes by.
🤗✨️🍃🍃🍃🍃✨️🤗🐈‍⬛🐈‍⬛🐾
 
Haha Karolina, I hesitated to call this out for that reason. On one hand, I’d certainly rather not be in this position, but on the other, it is an accomplishment that Bell has made it to where she is. Without this place it would be dark times for me and her. So we celebrate. It has been great getting to know you and your boys, Karolina. 🤗
 
We are glad and not glad you and Bell are here, Seth. It’s a weird thing to say or think about, isn't it? ❤️‍🩹
Bell has been a model patient and you are an incredible caregiver to your sweet girl. She’s so lucky to have you!
You both are an inspiration.
We can hold out hope for Bell in many ways under your great guidance and care.
Happy Anniversary ❤️‍🩹💕🐈‍⬛😻🏄‍♂💚💙
 
I second everyone else in saying happy anniversary (?) and glad you're here but also not 🤣

And a huge plus one to what you said about this community being a breath of fresh air in an otherwise toxic landscape of sludge. What Wendy said is really interesting and I personally think there's some hope there--maybe the IAA will start to wane now that it's been a year and you'll be able to get Bell to a more stable place, and maybe even on a lower dose.

Perhaps the universe will grant you some balance as an anniversary gift for being such an attentive and selfless caregiver 🪄⚖️
 
Seth&Bell said:
Haha Karolina, I hesitated to call this out for that reason. On one hand, I’d certainly rather not be in this position, but on the other, it is an accomplishment that Bell has made it to where she is. Without this place it would be dark times for me and her. So we celebrate. It has been great getting to know you and your boys, Karolina. 🤗
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I totally get. Just wish there was a better term for us to "celebrate" our anniversaries on here.
🥳💕🤗✨️🐈‍⬛
 
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